Hamza is finally home......

yea so Hamza came home today! after spending 12 nights in the hospital....he is doing well.....his neurosurgen willl remove his stiches later on this month....and yea im going to enroll him in this other program for kids with vision problems. its called Begin....thats it....i'll update if something else happens...thanks everyone for the prayers!

Update......

Hamza is doing sooo much better!....just went to the hospital and saw him.....before the surgery they put him on the ventilator and he was on it for to days but now he is off the ventilator....yeah! before the surgery he was on 10 liters per min of oxygen now he is on 6 per min!.....if he does well tel tommorow they are gonna try to weene him down the oxgygen and if he does well then maybe after 2 days he wil go to a normal hospital room and i can stay with him! im hoping that happens very soon!.....i wanna thank all of you for the good wishes! and keep praying for him!

Shunt malfunction......

Hamza is still in intensive care....at home its soooo empty without him....and i cant stay with him in the hospital cuz of RSV season and they wont let huda go in with me....i thought he would move to a hospital room and then i can go and stay with him but i dont think thats gonna happen any time soon.....they were giving him the abdural treatment in a nuberloiser continous in the begning and then they started every 2 hourse...not he is on continous again cuz he is still very wezzy......curently he is on oxygen...10 liters per minute which is like 10 times more then he was on.....
i went earlier on today to see hamza and his head looked bulgy to me...i told the nurse before i left....i got a call like an hour ago and they told me that they did a CT scan and it shows that hamza has a shunt malfunction. they called the doctor....he is most probably gonna have a surgery tonight....i'm still waiting for them to call me back when the doctor gets there...this is the second time hamza is having a shunt malfunction...hopefully the last!.....please keep him in your prayers! i just got a call and they said that he was gonna have the surgery tommorw morning....the doctor tapped his shunt and drew out enought fluid to help him for the night....

Hamza is in the Hospital again......

i havent had time to get on and update about hamza....let me start from the begning......first of all Hamza was meant to have an eye surgery on monday (to reattach the nerve in his right eye...he needed it on the right as well but the doctor said they wanted to do it on the left first cuz it looked promising!)....they took him in and got him under anisticia....the doctor came about 30 mins after they took him in and told me that they wornt gonna do the surgery cuz the nerve was really messed up....so there was no way they could reattach it...i asked him about the right eye and he said same for that eye.......he said that hamza might have really poor vision.....and told me about a couple of programs that could help him (georgia pines, babies can't wait etc.)
after the surgery they kept him for a day cuz his oxygen level went down......

last night i had to rush him to the hospital cuz he was having real difficulty breathing and coughing as well as a high fever of 103.9....when i got there and they checked his oxygen level they rushed him to trauma....there everyone was trying to poke him everywere for blood....(he is extremly hard to stick! im thinking of port surgery now for him!)...they even tried to get to him bone to pass fluid and that failed as well...poor kid had it even in his neck.......anyhow at the moment he is in intensive care...i wanna be there with him but they wont let huda go in cuz its RSV season....when they shift him to a normal room then she can go.........the doctor told me he has asthma as well as some sort of infection........his breathing is better then yesterday!.....he had his shunt tapped this morning as well........
ummm i'll update as soon as i can...please keep him in your prayers!

Finally Home......

YES!
Hamza is finally home!....he is doing sooo well since yesterday! (hopes he keeps it up!)......he is more awake...(before he used to sleep for like 2 to 3 days and wake up only for like 5 mins or just a bit more).....today he was more awake, he was moving alot more, and his arms didnt feel as wobbly as before!....they cut down on his seizure medicine when i told the neurologist that he was sleeping soooo much.....
i took pics of Hamza when he was in the hospital...i espically thought this pic looked so cute when they did his EEG! and the other pic im gonna upload is Huda in a scarf!.......my mom made it for her!....when she grows up she'll be wearing it anyway....its for religious purposes...hope you guys like it!

Thank God......

Hamza is still in the hospital....he might be relised tommrow......they did an ultrasound yesterday to see if the fluid was around there and if thats y his head was bulgy but that came back negative as well as his CT scan......so yea his head is back to normal....its nice and down!........
Hamza was alot more awake today there he has ever been for us......he seemed more alert...and he was moving alot more then before...i hope he keeps it up and gets better and better by the day.........

Confuzed......

yea so we are still in the hospital.......im extremly confuzed...........................he had his CT scan and it came back good....he had blood work to see if he had an infection and that came back good.....but his soft spot is hard and bulgy?.......what is going on here... the doctors are saying the shunt is working good and everything then y?.......well the doctor did say that it could be because he is congested sooo much.....but that confuzes me even more cuz he has been having the congestion for 2 weeks now.....y is his soft spot going hard now? i mean the congestion is soooooooooo much more better then it was when it started?....ohhk im not gonna confuze all you guys...lol.......

Thanks everyone......

thanks sooo much everyone.......and yea hippo the do the suction and nebulizer every 4 hours! the doc says he's sleeping sooo much beacuse of the seizure medicine......hes decressed the dosage......they tapped his shunt today....since last night his head seems bulgy. the doctor said it could be beacuse of the virus.....but whats sooo confuzing about that is that he's been having the virus for more then a week now y the bulging now?.....very confuzing..........i was sapposed to go home today but they want us to stay and do a CT scan tommorow again just tooo see that everything is going well.....oh and the result for the CT scan yestarday came out good.....his neurosurgen said that since birth and now he has got more brain tissue...and now there is only 30 to 40% water in his brain........and he said his brain could be doing the abnormal activites beacuse his brain was compressed so much cuz of the fluid....Hamza has got an appointment tommorw with another eye doctor cuz after the glacome surgery his eye has been bleeding in the back and he might need another possible surgery......so i hoope im discraged by then.....
thanks again every body.......

Update......

im soo sorry i havent been updateing for a while now....actually sooo much has been going on!.....anyhow let me start from the very begning......last saturday Hamza went completly blue (face, hands and legs) he stoped breathing....i had to call 911 and they rushed him to the hospital...thank god he started breathing after a bit.......they said he has soo much mucus in there and thats y.....i brought him back home on saturday cuz i could give him all his meds my self and he has oxygen at home.....well on monday he had another episode....his oxygen level went down to the 30z....i rused him to the emergency and he's been in the hospital ever since.......they did an EEG today and the doctor said he's having lots of abnormal activity in his brain.....Hamza sleeps 24 hours...which worries me alot so they did a CT scan and the doc will tell me about the results tommorow......soo yeah thats whats been going on!......i just came home to eat and i'll be on my way to the hospital in an hour or 2......Please pray for him!......i just hope he gets better soon...and stops sleeping so much......