its been such a long time since i blogged about hamza and huda! but yea its been a roller coaster ride!
hamza hasnt been doing that well the past 2 to 3 months i would say.
actually since the past month hamza has been needing diastat for seizures once a week or on other occasions even 3 times a week! normally hamza would only get it like once in 2 to 3 months as needed......it worries me a great deal.
today i took him for his shunt to be tapped cuz i have this very uneasy feeling that its got something to do with his shunt! last time we were in the hospital the neuro surgen didnt want to tap it cuz its been more then a year since hamza's last revision. he said that we can actually put hamza at rish for tapping the shunt as he can get an infection because of anything going in from the outside! he said the ct scan and shunt series x ray didnt worry him and that it looked ok..so i let it go then.......i decided i had to do it for my piece of mind cuz hamza has been having these weird fevers were his hands and feets and like frozen and his head is burning hot!
so what i noticed today when they tapped his shunt was that hardly any fluid came out and there was a lil blood! that freaked me out....the doc said thats perfectly normal..........but i remember the last time he tapped it we got alot of clear fluid!............someone please tell me that almost no fluid coming out with a lil blood is normal...cuz it doesnt sound normal to me!
Tuesday, January 4, 2011
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Thursday, July 1, 2010
hamza went to the hospital today! he had a pedrication appointment in the morning and the doc wanted me to take him to make sure hez not down with phenomia again.........currently he has a virus.........they gave him antibiatic......he'll get throught it....
i thought i would write an update about hamza and huda.......they are 22 months old now!
hamza hasnt been to the hospital for ova 2 months now! thats the longest time hez not visited the hospital since he was born!........he is doing sooo much better now.....he was down with the flu last week but thank god he didnt end up in the hospital! huda is as hyper as ever! that girl doesnt sit down for 1 minute, i dont know if she even knows how!
im going to post hamza pics in the next post!.........
Tuesday, May 4, 2010
Pic update!!!!!!
I took these pics today! hamza is smiling in the second one!....ova 2 weeks since he came home and NO FEVER OR OXYGEN PROBLEMS! even tho he's on the vent at night only...hamza has an appointment with pulmonolgy the day after tommorow, so i'll ask them if they can do a sleep study soon and see if they can take him off the vent at night too...if not the whole night at least some hours from it!
Wednesday, March 31, 2010
Update about Hamza & Huda!
sorry haven't been able to update recently...
Hamza had a tracheostomy! he had it about 3 weeks ago.....
when they put him on the by pap machine about three months ago they said that this would be the last step before he required a tracheostomy because he was going to the hospital like every week!
so yea me and my husband went through the phase were we were deciding weather we wanted the trac for him or not........thank God we did it! he is doing so well with the trac.......
now about huda.....well lets just say she is a very hyper kid!
thats it for now....will post pics of hamza before and after the tracheostomy later......
Wednesday, November 4, 2009
Hamza is in the hospital again......
so hamza has been in the hospital for more then a week now.....this Saturday it will be 2 weeks.....
he was doing so good one day and then next all of a sudden he needed so much oxygen and he was having 104.8 fever, the doc told me to give him Tylenol and Motrin but that didn't help out much.....i took him to the hospital the next morning.....
the minute he went in they took him to trauma.....there they put him on normal oxygen...but even with the highest amount he still looked like he was having such a hard time to breath so then they decided to put him on a ventilator. shortly after that he had ventricular tachycardia which is a rapid heartbeat that starts in the ventricles. they decided to give him a Electrical defibrillation or cardioversion (electric shock). everything was happening so quickly......for a sec i almost had a heart attack.....lol...but thank god everything got better after the first shock they gave him....
so they took him off the ventilator after 2 days....he was on high flow oxygen for a couple days....now he is on very little oxygen.....the doc wants him to be on room air before he comes home....cuz last time he went in for phenomena they let him go home with little oxygen and he came back to the hospital a couple days later...so this time they want him as healthy as possible before they release him so he wouldn't have to come back so quickly...the doc also said that if he was still requiring some what oxygen after a week then she would let him go home anyways......
thats it for now.....oh and huda is doing really well...she has been caughing for awhile now...but nothing to worry about to much...shez keeping me very buzzy!
thats it for now......
