Thearpy evalution......

unfortunatly i could take pics of the evalution because first of all i forgot my camera second i wouldnt have gotten anything cuz he was sleeping....the seizure med makes him sleep all day long.....
as of nw he's only gonna get octiopational and speech thearpy. they wana wait tell his eye issues gets better then he will also get physical thearpy....

Eye doctor appointment......

last night hamza was really stuffy....so this morning i took him to his pediration and they suctioned him out...they will also provide me with a suction machine cuz its much eaiser
i went to his eye doctor today...the doctor looked at his eye and ordered an ultrasound after the ultrasound the doctor told me that the eye that they did a surgery on (left eye) was bledding in the back...which happens rarely because the pressure goes down so quick.....so he said another doctor was going to schedule a surgery for next week....so yea hamza might have a surgery next week....last time i went to his eye doctor 2 weeks ago and the pressure was 5 and today it was the same...the doc said its not good that the pressure is not going up to normal.....
anyhow Hamza has an evaluation for thearpy tommorow...i'll try to take pics.......i will try to update tommorow hopefully...

Huda's potty training......

so I put huda on a toilet for the first time and she did great!....shez almost 6 months and she is almost ready to sit! i wish i had gotten a pic of her when she was constapating!

I took hamza to his nuralogist today.....he increased the dosage on hi medicine and even pricribed him a new pill were i have to crush it and give it to him through his g-tube...i dont mind all the medicines but i hope it works for him and controls his seizures.....the doctor told me that he was having Epilepsy....

oh and yesterday georgia pines (they help with vision) came and taught me some excerises to do wid hamza.....and it looks like he likes them! Hamza has an appointment with his eye doctor on thursday....will update on that after the appointment....

Cute Huda......

yea so i took a pic of Huda...my husband just put her in the sofa and she fell asleep.....she does that sometimes....i love her to bits.....she is the best baby!....she'll go to sleep sometimes 10 hours straight!........

Hamza is doing good......i went out of town this weekend and his feeding pump stoped working!...i didnt take cyrange or anything so it was realy hard...if i had to bring him home imediately it would take 2 and a half hours to come back....but its working now so its all good...but it did give me a fright!.....some one from georgia pines is gonna come tommorow to help with vision at my home. he has he two appointments this week...one with nuralogist the second with his eye doctor.....oh and i have to go for an evaluation on friday.....wil update soon......

Before & After......

i just felt like putting a pic of how hamza eye used to look before the surgery and how it looks after the surgery! would love feedback!

GI Doctor......

Hamza had an appointment with his GI doctor!....he said everything looks great....they did an upper gi to see how he was doing and it looked good!.....we have to go see him in a month.......
he increaced his feeding....before he used to get 100 cc every 3 hours and from 10pm to 6am he gets continous feed 32cc an hour.....now he will get 110 cc every 3 hours! not that big of a change but the doctor wants him to gain good weight....currently he weights a little over 15 pounds while Huda weights a little over 13 pounds!......

sleep study......

sooo Hamza had a sleep study last night....the results are gonna come in a week...so sorry i didnt get a pic of it cuz my husand stayed with him....but he told me it looked alot like the EEG except more wires! lol....i hope they take him off the oxygen and apnea monotar......its not like he usees it but it will give me more space in the house when all dat stuff is gone......
Hama and Huda are gonna get their synagis shots tommorow as well.....will try to get pics of that.....and later on on thursday he has an appointment with his GI doctor...will update as soon as i go there as well