its been a very long time since i wrote about hamza & huda...
om march 12th 2012 at 11:25am my son Hamza passed away.............
its almost been 8 months since he passed away but it seems like it happened yesterday.....
i miss him sooooooooooooooo much......he was the love of my life and there will be no other like him.........the pain of losing Hamza is unlike any pain i've felt and will ever feel......it comforts me alot knowing that he doesnt have to go through the pain he used to go through...weather it was cold showers in winter when he was running a high fever or him being poked over 20 times to get a vain, or watch him cry as he was seizing.........but that doesnt fill the hole that he has left in my heart.....
Huda on the other hand is doing fine.....when we ask her where Hamza is she says in heaven! randomly she will say that Hamza is playing.............
Oh and im pregnant again! im 11 weeks as of today! im extremly scared this time around and so depressed.....Hoping and Praying the baby is healthy! need lots and lots of prayers from all you guys......please do keep me in your prayers....thanx for following Hamza's journey...will continue to update about Huda..........
Sunday, December 9, 2012
Tuesday, January 4, 2011
.................
its been such a long time since i blogged about hamza and huda! but yea its been a roller coaster ride!
hamza hasnt been doing that well the past 2 to 3 months i would say.
actually since the past month hamza has been needing diastat for seizures once a week or on other occasions even 3 times a week! normally hamza would only get it like once in 2 to 3 months as needed......it worries me a great deal.
today i took him for his shunt to be tapped cuz i have this very uneasy feeling that its got something to do with his shunt! last time we were in the hospital the neuro surgen didnt want to tap it cuz its been more then a year since hamza's last revision. he said that we can actually put hamza at rish for tapping the shunt as he can get an infection because of anything going in from the outside! he said the ct scan and shunt series x ray didnt worry him and that it looked ok..so i let it go then.......i decided i had to do it for my piece of mind cuz hamza has been having these weird fevers were his hands and feets and like frozen and his head is burning hot!
so what i noticed today when they tapped his shunt was that hardly any fluid came out and there was a lil blood! that freaked me out....the doc said thats perfectly normal..........but i remember the last time he tapped it we got alot of clear fluid!............someone please tell me that almost no fluid coming out with a lil blood is normal...cuz it doesnt sound normal to me!
Thursday, July 1, 2010
hamza went to the hospital today! he had a pedrication appointment in the morning and the doc wanted me to take him to make sure hez not down with phenomia again.........currently he has a virus.........they gave him antibiatic......he'll get throught it....
i thought i would write an update about hamza and huda.......they are 22 months old now!
hamza hasnt been to the hospital for ova 2 months now! thats the longest time hez not visited the hospital since he was born!........he is doing sooo much better now.....he was down with the flu last week but thank god he didnt end up in the hospital! huda is as hyper as ever! that girl doesnt sit down for 1 minute, i dont know if she even knows how!
im going to post hamza pics in the next post!.........
Tuesday, May 4, 2010
Pic update!!!!!!
I took these pics today! hamza is smiling in the second one!....ova 2 weeks since he came home and NO FEVER OR OXYGEN PROBLEMS! even tho he's on the vent at night only...hamza has an appointment with pulmonolgy the day after tommorow, so i'll ask them if they can do a sleep study soon and see if they can take him off the vent at night too...if not the whole night at least some hours from it!
Wednesday, March 31, 2010
Update about Hamza & Huda!
sorry haven't been able to update recently...
Hamza had a tracheostomy! he had it about 3 weeks ago.....
when they put him on the by pap machine about three months ago they said that this would be the last step before he required a tracheostomy because he was going to the hospital like every week!
so yea me and my husband went through the phase were we were deciding weather we wanted the trac for him or not........thank God we did it! he is doing so well with the trac.......
now about huda.....well lets just say she is a very hyper kid!
thats it for now....will post pics of hamza before and after the tracheostomy later......
